CERTaIN: Patient-Centered Outcomes Research: Free Online Course from edX

In this course, you will learn about the characteristics of CER/PCOR, compare and contrast CER/PCOR studies and randomized controlled trials, and you will hear how PCOR researchers have overcome a variety of barriers to ensure patient-centered care.
This course includes the following 11 lectures:
1. Engaging Patients and Stakeholders in Patient-Centered Outcomes Research
2. Principles of Community-Based Participatory Research
3. Shared Decision Making in Cancer: Models and Methods
4. Patient Decision Support Tools in Cancer
5. An Overview of Patient-Reported Outcomes in Cancer
6. Designing Surveys: Asking Questions with a Purpose
7. Qualitative Methods of Research
8. Dissemination and Implementation Research in PCOR: Translating Knowledge Into Practice
9. The Role of Health Literacy in Patient-Centered Outcomes Research
10. Cognitive Impairment and Participation in Research
11. Behavioral Interventions in Patient-Centered Outcomes Research
This course is intended for anyone interested in comparative effectiveness research (CER) and patient-centered outcomes research (PCOR) methods.
This course is supported by grant number R25HS023214 from the Agency for Healthcare Research and Quality.

Syllabus

Engaging Patients and Stakeholders in Patient-Centered Outcomes Research (PCOR)
- Patient and stakeholder engagement in research, principles and benefits
- Tips for engagement
Principles of Community-Based Participatory Research (CBPR)
- CBPR definition, principles, benefits and challenges
- CBPR versus traditional academic research
Shared Decision Making (SDM) in Cancer
- SDM models, definitions and myths
- SDM intervention effectiveness
Patient Decision Support Tools in Cancer
- Patient decision support technologiesand clinical guidelines
- Informed decision making, shared decision making and patient decision support technologies
- International Patient Decision Aid Standards collaboration
An Overview of Patient-Reported Outcomes (PROs) in Cancer
- How PROs differ from other outcomes
- Choosing PROs
- Study design and PRO components
Designing Surveys: Asking Questions with a Purpose
- Survey purpose and types
- Survey samples, question design and format
- Reliability, validity and sources of error
Qualitative Methods of Research
- Qualitative and quantitative data comparison
- Mixed methods
- Thematic content analysis
Dissemination and Implementation Research in PCOR: Translating Knowledge Into Practice
- Common dissemination and implementation research questions and outcomes
- Path of research to practice
- Diffusion of innovation and the consolidated framework for implementation research
The Role of Health Literacy inPCOR
- Health literacy and its importance and impact on health status outcomes
- Methods of assessing health literacy in PCOR
Cognitive Impairment and Participation in Research
- Capacity to consent to participation in research
- Ethical involvement of cognitively impaired subjects
- Involvement of surrogate decision-makers for impaired subjects
Behavioral Interventions inPCOR
- Research partnerships in behavioral interventions
- Fidelity and adoption

CERTaIN: Patient-Centered Outcomes Research

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